The Kingsley Clinic

Understanding Ileectomy for Crohn’s disease: A Comprehensive Patient Guide | Symptoms, Causes, Diagnosis and Treatment Options Explained

Ileectomy for Crohn’s Disease: A Comprehensive Guide

Introduction and Terminology

An ileectomy is a surgical procedure often used as a treatment for Crohn’s disease, a type of inflammatory bowel disease (IBD). This procedure involves the removal of a portion or the entirety of the ileum, the last section of the small intestine. Crohn’s disease can affect any part of the digestive tract, but it most commonly affects the ileum, hence the utilization of ileectomy.

Based on data from the United States, approximately 20-40% of patients with Crohn’s disease may require an ileectomy at some point in their lives. This figure represents the significance of ileectomy as a treatment option for Crohn’s disease.

Terminology you might encounter includes “partial ileectomy” (removal of a portion of the ileum) and “total ileectomy” (removal of the entire ileum). Another term, “laparoscopic ileectomy”, refers to a less invasive surgical approach using small incisions and a camera to guide the surgery.

Indications for Ileectomy

Ileectomy is typically recommended for Crohn’s disease patients when conservative treatments, such as medications and lifestyle changes, have not effectively managed the condition. Indications for this procedure may include:

  • Persistent inflammation of the ileum that isn’t responding to medication.
  • Development of complications such as abscesses, fistulas (abnormal connections between organs), or intestinal blockages.
  • Significant bleeding in the ileum that can’t be controlled with medication.
  • Signs of precancerous changes or cancer in the ileum.

Patients should always discuss with their healthcare provider whether an ileectomy is the right treatment option for them, taking into consideration their specific condition, overall health, and the potential risks and benefits of the procedure.

Pre-Op Preparation

The preparation phase before an ileectomy is critical to ensure a successful procedure and recovery. Here are some steps to expect:

  • Fast for a period of time before the procedure, typically starting at midnight before the surgery.
  • Adjustments to medications: some may need to be stopped or the dosage adjusted.
  • Lab tests and imaging studies may be ordered to evaluate your health and the extent of the disease.
  • Obtain pre-operative clearance, which ensures you’re healthy enough for surgery.
  • Plan your transportation to and from the hospital as you will not be able to drive immediately after the surgery.
  • Request work or school notes as necessary for your recovery time.

Please note that these are general guidelines. Your doctor will provide more personalized instructions based on your individual health situation. Always communicate with your healthcare provider about any medications you’re taking and ask whether they should be stopped before the procedure, and when to resume them after the procedure.

Our telemedicine primary care practice can provide pre-operative clearances, order pre-op labs and imaging, and answer any questions you may have in preparation for your ileectomy. Don’t hesitate to reach out to us for your pre-op needs.

4. Procedure Technique for Ileectomy

An ileectomy, while complex, can be better understood when broken down into steps. Here, we simplify the medical jargon to explain the procedure at a level that an adult without a medical background can understand.

Generally, the procedure follows these steps:

Anesthesia

Before the surgery begins, an anesthesiologist administers general anesthesia, which means you will be asleep and won’t feel any pain during the operation. The anesthesiologist continues to monitor your vital signs throughout the procedure.

Incision

The surgery can be done using one of two methods: open surgery or laparoscopic surgery. In an open surgery, the surgeon makes a single large incision in the abdomen. In a laparoscopic surgery, several small incisions are made, and the surgeon uses special tools and a camera to guide the operation.

Removal of the Diseased Section

The surgeon locates the ileum, identifies the diseased portion, and carefully separates it from the surrounding structures. Once the diseased part is fully detached, it is removed through one of the incisions. In some cases, a temporary ileostomy (an opening from the ileum to the skin of the abdomen) may be created to allow the digestive system to heal.

Reconnection

The remaining healthy sections of the intestine are then reconnected. This is done to reestablish the pathway for food to travel through the digestive system. The method of reconnection depends on the extent of the ileum that had to be removed.

Closure

Once the ileum is reconnected, the surgeon carefully checks for any signs of bleeding or other complications. The abdominal incision(s) are then stitched or stapled closed and bandaged.

The specifics of the procedure can vary depending on the patient’s individual circumstances, such as the extent of the disease and the patient’s overall health. However, this guide gives you a general idea of what to expect from an ileectomy.

Remember that while the idea of surgery can be intimidating, your healthcare team is there to ensure your safety and comfort. Don’t hesitate to ask them any questions you may have about your procedure.

Duration of Ileectomy

The ileectomy procedure typically lasts between 2 to 3 hours. However, this duration can vary based on the patient’s specific circumstances and the complexity of the procedure.

Post-Op Recovery from Ileectomy

After an ileectomy, patients generally stay in the hospital for 3 to 7 days before they can be discharged. This stay allows for monitoring, pain management, and ensuring that the digestive system is functioning properly post-surgery.

Follow-up appointments with the surgeon will be scheduled, typically two weeks after discharge and then as needed to monitor your recovery. Rehabilitation or physical therapy is usually not necessary after an ileectomy, but lifestyle changes may be required, such as modifications to diet.

Patients often need to take off work for 4 to 6 weeks after surgery, but this may vary based on the nature of your job and your personal recovery rate. Complete recovery and a return to normal activities typically takes about 8 to 12 weeks.

Our practice understands the importance of seamless recovery and can provide necessary work or school notes. We are available for same-day appointments until 9pm on weekdays and 5pm on weekends.

Effectiveness of Ileectomy

The ileectomy procedure has been shown to be effective in managing Crohn’s disease, particularly for patients whose disease is localized to the ileum and who haven’t responded to medication. Approximately 70-80% of patients experience a significant improvement in their symptoms following the procedure.

However, the effectiveness of an ileectomy can be influenced by several factors. Positive factors include early detection and treatment, good overall health, and adherence to post-surgery care instructions.

Conversely, circumstances that may reduce the effectiveness of the procedure include severe or widespread disease, poor nutritional status, and the presence of other chronic health conditions. It’s important to note that while an ileectomy can provide significant symptom relief, it is not a cure for Crohn’s disease, and ongoing medical care is typically necessary.

As always, individual results can vary, and it is important to discuss your specific situation and prognosis with your healthcare provider.

Adverse Events with Ileectomy

Like any surgical procedure, ileectomy carries some risks. Potential adverse events include:

  • Infection (12-18%): This can occur at the surgical site, in the abdomen, or in the lungs from post-operative pneumonia. It’s caused by bacteria entering the body through the surgical incisions.
  • Bleeding (3-6%): This could happen during or after surgery, usually due to damage to a blood vessel. It can require additional procedures to stop the bleeding.
  • Deep Vein Thrombosis (1-2%): This is a blood clot that forms in a deep vein, usually in the leg. It can occur from reduced mobility after surgery.
  • Anastomotic Leak (1-3%): This happens when the site where the intestines were reconnected (the anastomosis) leaks, releasing intestinal contents into the abdomen.
  • Mortality (0.2-0.5%): The mortality rate associated with ileectomy is low but real, often due to complications such as severe infection or pre-existing medical conditions.

Alternatives to Ileectomy

While an ileectomy can effectively manage Crohn’s disease, alternative treatments are available. Medications such as corticosteroids, immunosuppressants, and biologic therapies can help manage symptoms and inflammation. Dietary changes and nutritional supplements can also help. Other surgical procedures, such as strictureplasty, may be an option depending on the extent and location of the disease. It’s important to have a thorough discussion with your healthcare provider to explore all available treatments and determine what is best for you.

Experimental or Emerging Technologies

Research into new treatments for Crohn’s disease is ongoing. One promising approach is stem cell therapy, which aims to use the body’s own cells to repair damage caused by the disease. Clinical trials are also looking at the role of gut bacteria in Crohn’s disease and how modifying the microbiome may help manage symptoms. However, these treatments are still in experimental stages, and more research is needed to determine their safety and effectiveness.

Conclusion

In conclusion, an ileectomy is a common and effective treatment for Crohn’s disease, particularly for individuals whose symptoms have not responded to medication. While the procedure carries some risks, many patients experience a significant improvement in their quality of life following surgery. As with all medical decisions, it’s important to discuss all available treatment options with your healthcare provider to make an informed decision that best meets your individual health needs.

Brief Legal Disclaimer: This article is for informational purposes only and not intended as medical advice. Always consult a healthcare professional for diagnosis and treatment. Reliance on the information provided here is at your own risk.

Scroll to Top